What is the myositis virtual support group? This virtual support group is a network of myositis patients and care partners with the same diagnosis who connect by phone or email as a way to give and receive emotional support. Like TMA KIT groups, this group is a safe place where patients can feel free to share their honest feelings without judgment.What is the myositis association australia incorporated? The Myositis Association – Australia Incorporated (Myositis Association Australia) was formed in 2003 and formally incorporated in 2007. The Association is a not-for-profit charitable organisation incorporated in NSW with a membership that is nationwide.Where can i get help with myositis? Hospital for Special Surgery provides many resources for those who suffer with myositis, including our world-class Rheumatology department (top ranked by U.S.News & World Report) and our Myositis Education and Support Program, which has been an invaluable source to those attending the group in New York City.How many people are affected by myositis? The exact number of people affected by myositis is unknown, but estimates show about 50,000 in the US living with the disease. See our Facts about Myositis infographic for more facts and figures about myositis.
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
New Executive Director Nonprofit Job Posting at FoundationList.org. Learn more and apply now. Background The Myositis Association is the leading organization committed to the global community of people living with this group of rare muscle disorders. TMA’s mission is to improve the lives of persons affected by myositis, fund innovative research and increase ...
Jerry Williams, Founder and President. Email : [email protected]. Gerald “Jerry” Williams, diagnosed with Polymyositis in 2003, founded MSU originally as a Facebook support group titled, “Polymyowhat: Understanding Myositis,” in 2010. Jerry is the Founder and President of MSU and also serves as the Executive Director.
3 infusion and it just feels great to feel continually good for the last two months because of this new treatment I started. As many of you know I am providing any/all of my profits from my sales to the myositis association, some don’t know I have been diagnosed less than a year ago with one of the myositis disorders.
703-553-2632 The Myositis Association welcomes the opportunity to partner with businesses and groups interested in fundraising events that benefit The Myositis Association. To sponsor or organize a fundraising event for TMA, contact TMA via email, or by phone at 703-553-2632.
As a member of The Myositis Association, you are invited to join the TMA KIT support group network. When you choose this TMA service, your name, contact information, and diagnosis will be added to the list of support group members in your area and will only be shared with those in your specific KIT support group.
The Association is an independent body loosely affiliated with The Myositis Association in the USA. Given the rarity of these diseases, membership numbers are unlikely to ever be high, but by now they have grown to approximately 220 members nationwide.